A Community of Support: Resources for Parents of Children with Special Needs

Parenting a child with special needs can be both rewarding and challenging. It can also feel isolating. A recent piece on the Motherly blog spotlights a mom’s experience on her daughter’s first day of school and how very different it was from other children and their parents. She also describes feeling alone because she had no other moms at the school who could relate to her as the parent of a child with special needs. 

While it’s natural to feel this way, it's also important to remember that as the parent of a child with special needs, you are not alone on this journey. Numerous community resources are available to support you and your family. In this article, we’ll highlight some of those resources so you can keep them at the top of your mind. These include local groups, professionals, government programs, advocacy organizations, and a network of supportive confidants. And, of course, you! You may sometimes forget, but it’s also vital to support and sustain your own well-being. 

So, let’s dive in. We’ll start with local and online support networks. 

Local and Online Support Networks

As the author in the Motherly piece brought forward, one of the most valuable resources for parents of children with special needs is connecting with other parents who understand your experiences. Local support groups can offer a safe and welcoming environment to share feelings, learn from others, and receive encouragement. These groups can be found through schools, hospitals, or online directories.

The Internet offers a wealth of information and support for parents of children with special needs, extending beyond your locality. Online communities and forums provide a sense of connection and understanding. Some popular resources include:

The National Alliance on Mental Illness (NAMI): NAMI provides information and support for individuals with mental health conditions, including children.

Autism Speaks: Autism Speaks is a leading autism advocacy organization that provides resources and support for families.

Children's Health Defense: This organization provides information and advocacy related to childhood health and well-being.

Facebook and similar sites. While social media can sometimes be unhealthy, especially when comparison creep beckons, specific sites can be helpful. A search on Facebook, for example, brings up dozens of support groups for parents of children with special needs, both locally and globally.

Professional Support and Services

It seems obvious, but it is worth the reminder that professionals who provide medical and therapeutic services are crucial members of your support team. They may include:

Pediatricians: It is critical to have a pediatrician you trust and who truly understands your child. A pediatrician specializing in developmental or physical disabilities can provide medical care and referrals to other specialists.

Therapists: Occupational therapists, physical therapists, and speech-language therapists can address specific needs and help children develop essential skills.

Behavioral therapists: Applied behavior analysis (ABA) can be a valuable tool for children with autism spectrum disorders and other developmental disabilities.

Government Programs and Benefits

Government programs and benefits can provide financial assistance and support services for families of children with special needs. Some examples include:

Social Security Disability Insurance (SSDI): For children who meet certain criteria, SSDI can provide monthly financial benefits.

Supplemental Security Income (SSI): SSI provides monthly financial benefits to low-income individuals with disabilities, including children.

Medicaid: Medicaid is a government-funded health insurance program that can help cover medical expenses for children with disabilities.

Early Intervention Services: These services provide support to infants and toddlers with developmental delays, helping them reach their full potential.

As a Personal Family Lawyer^Ⓡ with a special needs planning focus, we can help you get familiar with the various government support services, as they can be complicated and hard to navigate. Read to the bottom of this article and we’ll show you how to get our support.

A Network of Caring People

Creating a strong support network can be invaluable for parents of children with special needs. Consider reaching out to:

Family and friends: Share your experiences and ask for support when needed. 

Neighbors: Building relationships with your neighbors can provide practical help and emotional support. Also consider reaching out to other parents at your child’s school who also receive IEP support. 

Colleagues: If you work, and if it’s appropriate in your company’s culture, consider talking to your colleagues about your situation. They may be able to offer understanding and support, as well as cover your duties when you need time off.

Faith-based communities: Many faith-based organizations offer support groups and resources for families. They may also provide financial or volunteer support to local organizations that serve individuals with special needs. 

Don’t Forget the Person Who Needs Support the Most: You!

It may be difficult to find the time, and you may even feel like it’s impossible. But know that taking care of yourself is essential when parenting a child with special needs. Without self-care, you can’t show up to be the parent your child needs you to be. You also can’t push yourself so much that you become unable to function. So remember to:

Prioritize your well-being: Make time for activities that you enjoy and that help you relax.

Seek professional help: If you're feeling overwhelmed, consider talking to a therapist or counselor.

Connect with other parents: Sharing experiences with other parents can provide a sense of community and understanding.

Take breaks: Don't be afraid to ask for help and take breaks when needed.

Parenting a child with special needs can be challenging, but it can also be incredibly rewarding. By exploring these resources and seeking support from your community, you can find the help and guidance you need to navigate the challenges and joys of parenting a child with special needs. Remember, you are not alone, and there are many people who care about you and your family.

How I Support You on Your Entire Journey

Raising a child with special needs is a journey filled with both challenges and rewards, but you can get help. From local support groups to government programs and from professional services to self-care strategies, numerous resources are available to help you along the way. As a Personal Family Lawyer® with a focus on special needs planning, we're here to guide you through the complex landscape of legal and financial planning for your child's future. Our services go beyond just creating Special Needs Trusts or nominating legal guardians; We can help you navigate government benefit programs, connect you with local resources, and ensure that your estate plan comprehensively addresses your child's unique needs. Together, we can create a robust plan that provides for your child's lifelong care and gives you peace of mind, knowing that their future is secure. Don't navigate this journey alone - let's work together to build a strong foundation for your child's success.